Showing posts with label sensory break. Show all posts
Showing posts with label sensory break. Show all posts

Friday, July 11, 2014

Road Trippin' With The RADish







Part Two in the "Extended Family Beach Vacation" series. You can read part one here.



Tomorrow we will be loading up the car, delivering the puppy to her "hotel", and driving to Pittsburgh for a family wedding. We will be gone just two days, dragging ourselves home Sunday evening. A trial run, so to speak, for our upcoming week long beach vacation.

We have traveled as a family before, on these small weekend trips, and every time a few things go right and a lot of things go wrong. We are slowly putting together our "tool kit" for life on the road with our youngest son. Anxiety, RAD, and sensory issues swim together in a pool of normal five year old boy mischief, which sits in the backseat next to a seven year old who can never turn off his brain and who is, and I quote, "always in need of technology or (his) head hurts!". I ask you, what can go wrong?

We have tried sticker charts and behavior rewards. Charts have been ripped and rewards thrown back in my face. But we must keep trying, right? I am not the one who is operating from a place of fear, so I am the one who must figure this out.

Tomorrow when we hit the road each boy will have a "good times" book, where we, or they, can write or draw pictures of the good stuff. No stickers, no goals, just compliments and praises. My boys are competitive, so this just might work. And if it doesn't, then so be it. If it is ruined in a tantrum I will survive. I am much stronger about this sort of thing than I used to be!

My MZW LOVES all things USA so his good times book should bring a smile to his face!

 
 


Each of us, Daddy and Mommy included, will have a visor clip as well. One thing I have noticed on these long drives is that all of us tend to lose it. We each have our own behaviors and we each have moments that we wish we could get back. And all of us, every single one us, needs to be held accountable. I want my boys to see that I struggle as well, and that I am not above reproach just because I can drive the car or buy wine. (mmm, wine...)

They are not fancy, because they might not last. I'm OK with that!



If behaviors ratchet up the clip is removed. If atonement is made, the clip goes back up. Everyone who has a clip on the visor when the car stops for a break gets a treat. Easy peasy. And visual, something very important for my little RADish.

Normally these types of rewards and consequences do not work for attachment challenged children. And we have seen our share of techniques not working. But my little guy is slowly coming around, and while he still frequently cannot be forward thinking enough to learn from his mistakes, he is starting to respond. Starting. A little glimmer of hope. We hang on to what we can, don't we?

So we are ready. This trip includes a large family wedding, loud reception, lots of car time and an overnight stay in an unfamiliar hotel. All of these could easily set off my youngest, so the Sensory Bag is also packed.

  • Sensory brush
  • Squishy bumpy light up hand held ball
  • Play-Doh with beads buried inside and tweezers
  • Essential Oils
  • Matchbox cars (because they are quiet, small, and let's face it, fun to drive over well decorated wedding reception tables)
  • Chewy necklaces
  • Brain Works app for sensory break ideas
  • Melatonin (because I am no fool)
  • Beyond Consequences book
  • Parenting the Hurt Child book

Wish us luck- we are off!




Monday, June 30, 2014

My Dreams Are Pinned to a Shiny Red Bicycle






I am pinning all my hopes and dreams on a small red children's bicycle. OK, that might be a little too dramatic. But it is totally true to say I am pinning a lot of hope onto this shiny new bike. My youngest son's shiny new bike. I have prayed for a breakthrough like this. Yes, I have prayed for the power of a bicycle to come and rescue my son. To some my bike prayers may seem silly. To me, it's just another day.

My youngest son has RAD. Reactive Attachment Disorder. This is the latest in an alphabet soup of diagnosis. ADHD, (Attention Deficit Hyperactivity Disorder). SPD, (Sensory Processing Disorder). PTSD, (Post Traumatic Stress Syndrome). Possible FAS, (Fetal Alcohol Syndrome). Toss in anxiety and you have an alphabet soup no parent would wish to serve their child. I have come to learn that the diagnosis doesn't matter as much as the treatment. And I have learned that it is not one size fits all when it comes to treatment.

OK, now it's test time. Let's practice that alphabet. The SPD my son displays is a direct result of his FAS and RAD. One of the treatments for this is to teach him to take what we call "sensory breaks". We want him to take these breaks to break the cycle of hyperactivity, brought on by anxiety and PTSD. He doesn't want to take these breaks because he likes the way he feels when hyperactivity sets in. Plus this hyperactivity causes chaos in the household, which keeps him in control, something he is seeking thanks to his RAD. Got it?

The types of activities he needs to complete for these sensory breaks does not always make sense to someone not well versed in how the brain works. Which is me. With my oldest son, if I want him to calm down, I simply tell him to stop whatever activity is winding him up and offer a quiet one, such as an art project, a walk, or a TV show. When I want  my alphabet soup son to calm down I need to offer him activities such as jumping, bouncing, swinging, push ups, and bike riding.  And it usually goes something like this:

Me: "Let's take a sensory break!"
Son: "NO!"

And this goes on for a while. And then goes on some more. He'll try an activity and then discard it 30 seconds later. He doesn't want to change, and he cannot process why this would be good for him. As he winds up tighter and tighter his older brother watches and decides he wants to join in the fun. While he will listen when I tell him to stop, he cannot fully process they "why" part of my request either. And I wind up feeling like the mean mom who never lets her kids have any fun. I can't win, because if I let the fun and hyperactivity continue it will literally take hours for the youngest to wind down. He simply cannot play like other kids. Confused? Me too. Imagine how difficult this is to explain to a 7 year old!

So, back to bike riding. After years of refusing to pedal a bike my youngest has finally joined the party. And we celebrated by getting him his very own bike yesterday. He was beyond thrilled. After trying it out last night he asked if he could ride it some more this morning. (Notice I said he asked. He didn't demand. He didn't just run outside and do it himself. He asked! Progress. Slow, but it is there.)

He likes to ride his bike. Maybe, just maybe, he will occasionally accept this as a sensory break. Maybe he will do this activity for longer than 30 seconds at a time. Maybe he can complete this activity with his older brother without it going south and ending up in hurt feelings and tattling. Maybe I can actually do something else, every once in a while, instead of standing over him administrating a sensory break.

I have learned that there are no quick fixes here. It will take years to bring my youngest son back from the edge of early life trauma. So I celebrate this tiny victory that has been won in the form of a shiny red bicycle. We celebrate the small stuff around here, the every day, the mundane. There is always something worth celebrating- that alphabet soup of diagnosis? They keep our young family on a constant roller coaster of emotions, so we look for the small victories. And today that victory comes on a bike. A shiny, red, big kids bike. And I could not be more proud.

Saturday, December 14, 2013

Better Living Through Electronics






I can hear my boys in the backyard, giggling and shouting to one another. Every so often I hear my husband's voice, raised to be heard over the boys own noise. They are out there in the snow, dragging the BBQ grill and the toddler play set to the front of the house, so that it can be thrown away this week. We are moving next month, to a bigger house, but yet my goal is to downsize to exactly only what we need and use on a regular basis.

The neighborhood is quiet. The snow that has been falling since last night has turned to rain and our neighbors with half a brain are tucked inside their cozy homes. Not us. My boys need to be outside. They  need to run and play and jump and scream. This need is so strong in them that they will accomplish it wherever they happen to be. And inside the house is no place for their particular brand of craziness. So this outdoor job, in the wet and the cold and rain, is perfect for them.

They finish up and I hear the garage door closing. The house shakes as they stomp inside and I can hear them talking as they take off their coats. "ALEX! Hang your coat up!", says my Super Six Year Old, in a slightly raised voice. "It DOES NOT belong on the floor." Well, he's right. I hear my Persevering Preschooler stomping around, his wet shoes clearly still on his feet as they pound the wood floors below my office. I hear loud giggling and what sounds like wrestling. Eventually I hear my husband's voice again, again raised to be heard over the clamour of these young boys. Orders are given. The TV is turned on. More orders. Then quiet. I feel my shoulders relax a little as my brain takes in the quiet. It is this peace and quiet that I yearn for, but yet what I get so very little of. If we are lucky the little one might fall asleep on the living room floor while watching a Christmas show, and the older one might find himself wrapped up in a game on his dad's iPhone. Peace. Better living through electronics.

Earlier today we were at the local mall. Last year we managed to miss the mall all together during the Christmas season, finding presents and photos with Santa elsewhere. This year my sweet husband needed a few new shirts for the new job he starts this week, so we loaded the family into the Equinator and headed to the mall. Always the planner, I brought snacks and the stroller, in the hopes of keeping the Persevering Preschooler entertained and tied down. We checked out refrigerators, as we will need one when we move. We looked at new TVs, as we will need an additional one of those too. Finally the shopping got to all of us and we headed to the play area. As my husband wandered off to buy his shirts I sat on a bench and watched my boys. Other mom's were talking to friends or scrolling their phones, but not me. I was hyper vigilant, as always, watching for signs that my youngest might decide to push an unsuspecting child down or punch someone in stomach. He doesn't do these things to be mean. No. His brain is wired differently than most kids and when he gets over stimulated he lashes out. So, why, you might ask, would I take him to this very noisy, very busy play area? Because he doesn't get over stimulated by what you'd think he would. The lights, the noise, the busyness- all of that is fine. He goes over the top when too many other kids touch him, or when he has too much "free play" time, where he gets to run and jump and spin. He can be alone in a room and wind himself up to the point of no return. So play areas like this are fine, as long as we take "sensory breaks". Try explaining that to the parent of the child he might hit, though. So I watch. I stand at attention, ready to jump in and drag my son away before anyone gets hurt. It's exhausting. But he deserves to be able to play like the other kids.

Today he doesn't hit a strange kid. Today his sensory overload pushes him to knock down his older brother and sit on him. I drag him off and bring him to my bench, whispering slowly into his ear. Begging him to complete a few sensory break activities with me. He struggles to get away. Who can blame him? The play area is much more enticing than his mother's boring exercises. I pray that someday he will understand why we do this and then he will be more willing to participate. He likes the way he feels when he is going over the top, so he is reluctant to participate in anything that will harsh his groove. I apply pressure in all the right spots and we rock slowly left to right for a few minutes before I finally give up and release him back into the fray.

Even though this play area is buzzing with noise, I notice, the parents are quiet. No one is calling out to their kids. As we wait on the curb for Daddy to pick us up I look around. There are other families also waiting, trying to stay dry in the rain and snow. I hush my four year old so I can hear my six year old speak. I ask him, for what feels like the 100th time, to repeat himself. His younger brother simply starts talking louder, making it impossible, once again, for me to hear my oldest son. All three of our voices are gaining speed, as if they have broken free of our bodies and are racing up a mountain. Louder, faster, louder faster we all speak. My multi- tasking brain notices that no one else around us is making this much noise.

In the car I turn off the radio and close my eyes. I have given each boy a phone- a bribe, really, to just.be.quiet.

We stop for lunch at our favorite place- BW3's. We love this restaurant because it is already loud. No one really notices our chaos rolling in the door. At least 300 times during the meal I say, "Alex, lower your voice. Please speak in a quieter tone."

Any requests or orders given in our home are done in a loud voice. And this used to bother me. This used to make me feel "less than". After all, all of the parenting books speak to having a peaceful, quiet home. Parenting experts are constantly telling us to whisper. To force our children to listen to us, speak more quietly, not more loudly. And I know that this works. When I am alone with my Super Six Year Old, it works. But when we toss in the Persevering Preschooler, all advice and rules go out the window. His brain does not process whispers. He simply does not hear me. And he is usually making so much noise that voices must be raised just to be heard over his din. And I felt bad about this for a long time. But one day it hit me. We are not one of those families. We are loud. We are chaotic. We are well behaved when it counts, usually. We are respectful, most of the time. We do not yell at each other or treat each other in a negative way. I had to learn the difference between yelling and being loud. When we are all together we are a loud family. And that is different than a family who yells at each other.

We have so many rules and routines in our home, all of them needed. Homework is done. Rooms are picked up. Toys are put away. Each boy has chores and they are trained to take off shoes, hang up coats and back packs and put lunch boxes on the counter before they run off to play. Bedtimes are strictly adhered to and helmets are always worn. But sometimes, you need a little chaos. Sometimes I just need to crank up my music, pop in my ear buds and forget the noise around me. After all, if they are really screaming, believe me, I would be able to hear it.