a busy working mom's thoughts on adoption, special needs and life with two young boys in a transracial family
Showing posts with label fetal alcohol syndrome. Show all posts
Showing posts with label fetal alcohol syndrome. Show all posts
Monday, June 30, 2014
My Dreams Are Pinned to a Shiny Red Bicycle
I am pinning all my hopes and dreams on a small red children's bicycle. OK, that might be a little too dramatic. But it is totally true to say I am pinning a lot of hope onto this shiny new bike. My youngest son's shiny new bike. I have prayed for a breakthrough like this. Yes, I have prayed for the power of a bicycle to come and rescue my son. To some my bike prayers may seem silly. To me, it's just another day.
My youngest son has RAD. Reactive Attachment Disorder. This is the latest in an alphabet soup of diagnosis. ADHD, (Attention Deficit Hyperactivity Disorder). SPD, (Sensory Processing Disorder). PTSD, (Post Traumatic Stress Syndrome). Possible FAS, (Fetal Alcohol Syndrome). Toss in anxiety and you have an alphabet soup no parent would wish to serve their child. I have come to learn that the diagnosis doesn't matter as much as the treatment. And I have learned that it is not one size fits all when it comes to treatment.
OK, now it's test time. Let's practice that alphabet. The SPD my son displays is a direct result of his FAS and RAD. One of the treatments for this is to teach him to take what we call "sensory breaks". We want him to take these breaks to break the cycle of hyperactivity, brought on by anxiety and PTSD. He doesn't want to take these breaks because he likes the way he feels when hyperactivity sets in. Plus this hyperactivity causes chaos in the household, which keeps him in control, something he is seeking thanks to his RAD. Got it?
The types of activities he needs to complete for these sensory breaks does not always make sense to someone not well versed in how the brain works. Which is me. With my oldest son, if I want him to calm down, I simply tell him to stop whatever activity is winding him up and offer a quiet one, such as an art project, a walk, or a TV show. When I want my alphabet soup son to calm down I need to offer him activities such as jumping, bouncing, swinging, push ups, and bike riding. And it usually goes something like this:
Me: "Let's take a sensory break!"
Son: "NO!"
And this goes on for a while. And then goes on some more. He'll try an activity and then discard it 30 seconds later. He doesn't want to change, and he cannot process why this would be good for him. As he winds up tighter and tighter his older brother watches and decides he wants to join in the fun. While he will listen when I tell him to stop, he cannot fully process they "why" part of my request either. And I wind up feeling like the mean mom who never lets her kids have any fun. I can't win, because if I let the fun and hyperactivity continue it will literally take hours for the youngest to wind down. He simply cannot play like other kids. Confused? Me too. Imagine how difficult this is to explain to a 7 year old!
So, back to bike riding. After years of refusing to pedal a bike my youngest has finally joined the party. And we celebrated by getting him his very own bike yesterday. He was beyond thrilled. After trying it out last night he asked if he could ride it some more this morning. (Notice I said he asked. He didn't demand. He didn't just run outside and do it himself. He asked! Progress. Slow, but it is there.)
He likes to ride his bike. Maybe, just maybe, he will occasionally accept this as a sensory break. Maybe he will do this activity for longer than 30 seconds at a time. Maybe he can complete this activity with his older brother without it going south and ending up in hurt feelings and tattling. Maybe I can actually do something else, every once in a while, instead of standing over him administrating a sensory break.
I have learned that there are no quick fixes here. It will take years to bring my youngest son back from the edge of early life trauma. So I celebrate this tiny victory that has been won in the form of a shiny red bicycle. We celebrate the small stuff around here, the every day, the mundane. There is always something worth celebrating- that alphabet soup of diagnosis? They keep our young family on a constant roller coaster of emotions, so we look for the small victories. And today that victory comes on a bike. A shiny, red, big kids bike. And I could not be more proud.
Monday, April 15, 2013
"The Cleaning led to Reading Which Led to Relaxing Which Led to More Cleaning Which Led to Getting Back on Track to Fulfilling My Purpose", or, "I Finished a Book!"
Yesterday I finished reading a book on my Kindle. When you finish a book on the Kindle it asks you if you would like to let the world know, via facebook, that you have accomplished the often monumental feat of actually finishing an entire book. I said yes. And then many of my friends, who will be reading the same book for a book club we are in together, all expressed their amazement. I know, I was right there with them. Me, finish a book? I haven't had time to read anything that wasn't about ADHD, early life trauma, fetal alcohol syndrome, or behavior in nearly two years. Now don't get too excited for me; it was, after all, a very short book and an easy read. And it was enjoyable, providing interesting food for thought on what it must be like for an older child to be internationally adopted and removed from the only home, and country, they have ever known. I started reading it while my super six old was at China school, when all I had was time and a comfortable chair. But I was able to finish it at home thanks to the fact that I have been cleaning like a mad woman. I have been working hard to keep the toys picked up, the kitchen counters cleaned off, and the kitchen floor sparkly clean. And when all that is in place I can relax. I can sit on the sofa after the boys are in bed and actually focus on something other than what didn't get done that day. And so the cleaning routines, (thank you fly lady!) led to the ability to read for enjoyment, which led to me being relaxed, which led to more cleaning. Finally! A cycle I don't mind being caught up in!
For some reason I am really feeling the spring cleaning bug this year. Maybe it is because the boys in my life are so messy. Maybe it is because my in-laws are visiting next week to watch my super six year old play football and have offered to stay with the boys for a few hours while my sweet husband and I sneak away for some much needed alone time. (Sadly, we are only planning a quick trip out to eat, but we are both super excited about it. I will get to drink all of my ice tea with no boys stealing large gulps from me! I will be able to sit still with no one touching me, or climbing on me, or elbowing me or kicking me. I will be able to eat my dinner while it is hot. I will be able to listen to my husband and actually concentrate on his words.) Wait, where was I? Spring cleaning. Yes.
So the in-laws are coming. And then the next weekend the social worker is visiting for yet another post placement visit for the tiny toddler. Who, while still tiny, is not really a toddler any longer- he will be four years old next month! The house certainly needs to be clean for her visit! And then a day or two after that we have a baby sitter coming over so that my sweet husband and I can sneak away again; this time to see the documentary STUCK.
Who knows what, or who, has prompted this spring cleaning bug but I am feeling more in control and happier than I have felt in a very long time. There is just something about purging and organizing that makes me happy. I have cleaned out all of the upper kitchen cupboards, throwing away chipped glasses and old vitamin bottles. I have cleaned under the sink, (gross!), and added stacking plastic bins to hold the soaps and scrubbies. I have added a shower curtain rod to the back of the boys' bathtub to hang plastic baskets holding their toys and wash cloths. Thanks to the holes in the baskets the toys can drip dry and the tub stays clean! I have cleaned the huge kitchen cupboard that held mismatched plastic bowls and lids, throwing away everything that didn't have a match. Now there is no Tupperware, but there is a large space for the boys' back yard necessities like bubbles and chalk. I cleaned and organized the walk in closet in the master bedroom- we can see our clothes again!
The cleaning out of every cupboard and closet, combined with our weekly family meeting, has made me feel more in control than I have in a long time. I have no control over the issues my youngest son faces. I have no control over schedules changing or my super six year suddenly being worried about his sweet little smushed in nose. I have no control over computer issues at work or the fact that I often feel as though I am drowning in toys. But I do have control over what lives in my cupboards and what is thrown away. I do have control over some of the chaos that naturally comes with raising a family.
Maybe it's the warmer weather. Maybe it's the cleaning. Maybe it's the new organizing bins and systems I have put in place. Maybe it is the fact that we are finally getting back to having regular house cleaning help around here; something every working mother should have. I am sure it is a combination of it all, but I don't really care. I am finally feeling more in control. Which means I am feeling more able to be the mother God designed me to be. So go throw something away. Go clean out a cupboard. Go open your window and breath in the cool Spring air. Go be the person God designed you to be!
For some reason I am really feeling the spring cleaning bug this year. Maybe it is because the boys in my life are so messy. Maybe it is because my in-laws are visiting next week to watch my super six year old play football and have offered to stay with the boys for a few hours while my sweet husband and I sneak away for some much needed alone time. (Sadly, we are only planning a quick trip out to eat, but we are both super excited about it. I will get to drink all of my ice tea with no boys stealing large gulps from me! I will be able to sit still with no one touching me, or climbing on me, or elbowing me or kicking me. I will be able to eat my dinner while it is hot. I will be able to listen to my husband and actually concentrate on his words.) Wait, where was I? Spring cleaning. Yes.
So the in-laws are coming. And then the next weekend the social worker is visiting for yet another post placement visit for the tiny toddler. Who, while still tiny, is not really a toddler any longer- he will be four years old next month! The house certainly needs to be clean for her visit! And then a day or two after that we have a baby sitter coming over so that my sweet husband and I can sneak away again; this time to see the documentary STUCK.
Who knows what, or who, has prompted this spring cleaning bug but I am feeling more in control and happier than I have felt in a very long time. There is just something about purging and organizing that makes me happy. I have cleaned out all of the upper kitchen cupboards, throwing away chipped glasses and old vitamin bottles. I have cleaned under the sink, (gross!), and added stacking plastic bins to hold the soaps and scrubbies. I have added a shower curtain rod to the back of the boys' bathtub to hang plastic baskets holding their toys and wash cloths. Thanks to the holes in the baskets the toys can drip dry and the tub stays clean! I have cleaned the huge kitchen cupboard that held mismatched plastic bowls and lids, throwing away everything that didn't have a match. Now there is no Tupperware, but there is a large space for the boys' back yard necessities like bubbles and chalk. I cleaned and organized the walk in closet in the master bedroom- we can see our clothes again!
The cleaning out of every cupboard and closet, combined with our weekly family meeting, has made me feel more in control than I have in a long time. I have no control over the issues my youngest son faces. I have no control over schedules changing or my super six year suddenly being worried about his sweet little smushed in nose. I have no control over computer issues at work or the fact that I often feel as though I am drowning in toys. But I do have control over what lives in my cupboards and what is thrown away. I do have control over some of the chaos that naturally comes with raising a family.
Maybe it's the warmer weather. Maybe it's the cleaning. Maybe it's the new organizing bins and systems I have put in place. Maybe it is the fact that we are finally getting back to having regular house cleaning help around here; something every working mother should have. I am sure it is a combination of it all, but I don't really care. I am finally feeling more in control. Which means I am feeling more able to be the mother God designed me to be. So go throw something away. Go clean out a cupboard. Go open your window and breath in the cool Spring air. Go be the person God designed you to be!
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